After going to the ER the night before and being put on a little higher dose of Keppra we were hoping we were in the “clear” with no more seizure activity. Gideon woke Thursday morning kinda strange acting. He acted as if he didn’t’ know us, just sad, and alert but no real responses on his part. I didn’t like what I saw! We were happy that he wasn’t fussy like he was the day before, but he seemed to be more “drugged up”. Made this Mommy kinda sad! Luke had been a little sick with the Flu so I was trying to keep him away from Gideon. I set fussy Gideon in bouncer to read to Luke a bit. I noticed I didn’t hear Gideon crying anymore. I went in and he was no longer bouncing and watching Baby Songs, seemed limp and very tired. I think he had had a seizure and I didn’t know. He napped. All this time I’m worried about the dosage for Gideon, thinking its too much for the little guy. Mom was meeting with her Bible study group and all three of them work in the medical field and thought we needed to get a second opinion. Sally a nurse in the Pediatric NICU at Tarzana hospital said she worked with a pediatric neurologist Morrison in Tarzana. The same one that Blake (little guy we babysit) goes too and Carla highly recommends her. All the ladies had heard great things about her. It was an answer! Sally pulled some strings and got us a 2:00 pm appt that day (Thursday). Brian got on the ball and headed to St Paula and Ventura to get the records so we could bring with us. The Lord had other plans! At around 11:00 that morning Gideon had another seizure. I laid him to the side as I’m suppose to do. Still at this point I’m not that great about NOT going into a panic. I called Brian and my Mom. We are rushing around trying to decide to go to Tarzana or back the VCMC hospital. Then while on the changing table 12:20 Gideon goes into another one. Sally (still at mom’s for study) comes over and she calls the head pediatric dr. at the NICU in Tarzana and he suggests we go on to VCMC because its closer. She didn’t think we should drive so we called 911 and off we went. Gideon slept the whole way this time. So pitiful he looks on that HUGE stretcher.

While Sally was calling 911 I called Dr. Flossi (pediatrician at VCMC) and begged him to have a room or bed for Gideon so we didn’t have to go in the ER! He did and we got to go straight up to the 3rd floor (something they don’t do!!) Our great nurse Roni got the IV in his right arm very quickly (unlike the Santa Paula ER the week before). We were debating whether to be transferred to Tarzana so that we could use Morrison for our pediatric Neurologist. However, it was an answer when we found out she was not going to be there until Monday. So we got the first appt for Monday Feb. 6th 11:00 and decided to stay at VCMC to run the EEG and get Gideon stabilized (hopefully).

Grandpa Kraft showed up to visit a bit and bring us some lunch/dinner. So thankful for that! We were starving. Hadn’t eaten much at all all day.

Something I begged them to do was an EEG over a longer period of time so that we could get some readings of the seizures. We started to keep a log. He ended up having about 13 from Feb 2nd-Feb 3rd
The last more jerky seizure was Feb. 3rd. at 7:19 pm
Then the seizures were this blank STARE (very freaky to see) no blinking, no movement, nothing! They would last like 1 to 1/2 mins We managed to get a good reading of about 4 on the EEG.  It was crazy to see the EEG screen go wild when he would have one. So thankful that I insisted that we do this longer test on him.

He wore this for 13 hours! I have to say it was super difficult to not move him much and keep him from grabbing those cords. I actually climbed up in the crib to lay and nurse him. We had to softly sit him up to burb him. He was happy to have his thumb! There were times that Gideon would look so sad and just confused. Made me cry!
Isaiah 41:10
Don’t be afraid, for I am with you.
      Don’t be discouraged, for I am your God.
   I will strengthen you and help you.
      I will hold you up with my victorious right hand.

I noticed a change around 3:30 AM on Feb 3rd. He started to be the Gideon that I knew. Smiles, talking and sweetness. I loved that he was getting back to himself. The second medication Valproic Acid was starting to get into his system I think. He was also still on Keppra.