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Almost a year and NOT seizure free.

Both Luke and Gideon got a little stomach flu bug Sunday night/ early Monday morning but seemed much better by Monday evening.  I was thankful it was such a QUICK flu bug.  Still praying that the rest of us don’t get it.  I hate the stomach flu. 

Gideon threw up probably 30-40 mins after his dose of keppra yesterday morning.  I was concerned about that so I asked Dr. Gold and he said as long as he kept it down for 20 mins we were ok.

Yesterday the two sicklings feeling much better later in the day.

Enjoyed a bath yesterday

Gideon slept all night long and woke happy this morning.  He nursed for a long time.  Then I put him in his high chair and went to get a bananna for him.  Adam came out and said “Gideon has a funny face”…. I turned and looked and knew right away he was seizing.  Got him out and laid him on his side.  It lasted about 3 1/2 minutes.  His lip area turned blue too, at the end he arched some.  After it was over he kinda rolled over and opened eyes for like 10 seconds.  Then he fell asleep hard.  Snoring loudly.  He just woke at 8:10 this morning.  Woke happy like nothing happened, so I hope he stays that way through the day.  Sometimes the seizures make him sleepy and kind of down. 

After he woke this morning.  Hungry and seems happy.

Just a year ago tomorrow is when this whole seizure thing started with our little Gideon. I was hoping that a year from the date he’d be seizure free.

Last year in the hospital with Gideon
Our little guy only 6 months in the hospital last year at this time.

   Not sure if his illness brought it on or if maybe he didn’t get his dose right or if he’s outgrowing the meds again ? It is so hard to figure it all out. 

I don’t think I’ve gotten to the point where these don’t scare me.  I still seem to freak out.  I get it together enough to look at the clock.  I wish I had told someone to grab my phone and film because that would give me something to show the doctors.  However I’m not thinking about that in the moment.  I just wanted to comfort my baby and there is NOTHING I can do!! That is what is so hard! 

I will call Dr. Morrison and Dr. Gold when they open up. 

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